I hope this is ok to post here.
May is ALS awareness month and I just wanted to share a few facts with you in an effort to raise awareness! Obviously 
I’ve talked about a lot my experiences with this disease and I appreciate all the love and support you’re shown me, which means the world to me! 
Thank you for sharing these. 
I had no idea it could take so freakin’ long to diagnose! That’s a lot. 
This is helpful to know, thankyou lovely 
I particularly relate to:
“ALS affects the entire family”, this is important as a mother of a disabled son (ASD), I get this.
You do amazing by the way
Reminds me of the disease that claimed my mom’s whole side. Most of them died of Huntington’s disease. Including my grandpa Jeff kadar. I never met but my mom said he would have never left my side. As I was a sports kid and he loved that. Wish I could have had him in my life. Lose control of motor functions. Eventually can’t breathe or swallow.
Thanks for sharing this @Sivonnah. ALS is rough. I have know several people who have had it. The woman
knew Kathy lived for 6 yeats. She was amazing.
How many years has it been since your diagnosis? I can’t remember.
I am grateful to know you and that you share your experience with us 
Thank you for sharing @Sivonnah.
Thank you for sharing @Sivonnah I was not aware of any of this. Much love to you. You have amazing strength my dear friend.
Thank you for sharing these with us I knew some of it but others I didn’t. I’m grateful you’re here with us!
Thank you for sharing and for raising awareness about an important cause We’re blessed to have you here with us, @Sivonnah 
I care, @Sivonnah .
Thank you for sharing @Sivonnah. 
It is very similar and it’s heartbreaking 
It was a little over a year ago. April 2023. Symptoms started in 2022.
Thank you for all your love! I have such loving and supportive family here! 
I’m sorry and I love you sister 
Thank you!
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